Hi
This is my first post on my new blog. It is
for anyone who has problems swallowing i.e. (Dysphagia). It will be
shared on the M.S. Trust website, but it's also for anyone with the same
problem
I
was diagnosed with M.S. Dec 2012 Started Disease Modifying drug Copaxone the
following July for a year, when I had a bad reaction to it and came off it
immediately. I was offered tablet alternatives but I have now developed
dysphagia. I have gone from a reasonable 9 stone to 5 stones 10 pounds in about
6 months. I find it difficult to eat all the dairy products that they tell me
will help put on weight because I also have very bad mucus which adds to the
swallowing problem. Fortunately I live at home with my husband who is a
great help to me. He does all the food shop, most of the cooking and
washing up and occasionally helps with the ironing. We have been hoping
to have a new kitchen for about 3 years now, but this problem has put it on
hold. My last visit to the doctor on Tuesday gave me one week to put some
weight on, he says before he will have to admit me to hospital. He
doesn’t want me to have a feeding tube as I can swallow but only very slowly,
and he thinks it would be detrimental to my swallowing abilities to have a tube
or peg. So at the moment i am sitting on the sofa all day (not allowed to
exercise as it burns calories) trying to eat and drink all day, as long as they
aren’t dairy, too thick or too thin liquids. I eat 3 Fortecremes a day
and try to drink half a Fortisip. I always have porridge for breakfast, but
very rarely finish it in about 1 and a half hours and try to eat a kids meal of
chicken and mashed potato with veg and always scrambled egg with one slice of
toast (the crusts cut off, of course). so it’s getting a bit boring now.
I’m thinking of trying Wiltshire Farm foods small meals. Oh well I have
to sign off now to eat another Foretecreme and then its scrambled egg again.
Bye
for now
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